Ongoing Community Research Projects in Serious Illness

Participatory research includes patients and caregivers in all steps of the research process.

Patients and caregivers have experiential knowledge which they have acquired through their journey in the healthcare system.

They provide insights that enhance the quality of research, as research is relevant to patients' and caregivers' concerns.

Engaging the community as an equal research partner helps to identify community-specific needs and priorities in serious illness care.

Identifying these can help foster building community capacity and action, thereby improving care for serious illness within a community.